Tuesday, September 13, 2011
see.snooze.button
Tuesday, August 2, 2011
see.garden.fun
Saturday, June 18, 2011
see.fathers.day
Friday, June 17, 2011
see.mamma.mia
Monday, June 13, 2011
see.new.path
Monday, June 6, 2011
see.song
Wednesday, May 4, 2011
see.skittles
Monday, May 2, 2011
see.baby.sun.sprout
Sunday, May 1, 2011
see.squirrel.damage
Wednesday, April 27, 2011
see.pierogies

Sunday, April 24, 2011
see.stars
The Mountain from Terje Sorgjerd on Vimeo.
Wednesday, April 6, 2011
see.support



Dear Family & Friends:
It’s hard to believe that Lola just turned five. She is attending pre-k and is enjoying school. Her teachers adore her and watch her very closely. For this we are extremely thankful. She started having seizures again in February and several of them happened at school. She was taken by ambulance to Children’s Hospital in Little Rock and has been hospitalized several times since then. While these most recent developments are heartbreaking, Lola continues to amaze us all.
Lola participated in two separate Sturge-Weber Syndrome (SWS) research studies this past year. One in August under the direction of Dr. Chugani from Children’s Hospital in Detroit, Michigan and one in March, under the direction of Dr. Comi at Kennedy Krieger Institute in Baltimore, Maryland. Both doctors are leading SWS researchers in the world. After the testing last month, we met with Dr. Comi. She provided Amanda with a wealth of information to her most recent concerns. I must say, she is a one of a kind doctor! I cannot even express my gratitude for how much she has been there for Lola and for her quick response when Amanda calls her for advice.
Unfortunately, this visit brought us some news that we did not expect. We learned that Lola's entire right hemisphere is affected by Sturge-Weber Syndrome. With that being said, we also learned that Lola’s brain is doing something rather amazing. Dr. Chugani from Detroit mentioned that Lola's MRI scan presented a special case because of how her brain was overcoming the depleted nutrients to portions of her brain. Dr. Juhasz said he has never seen anything like it. Both Doctors said she is a "Special Case." They have NEVER seen what her brain is doing. They saw new developments in vein structure happening in her case. Her brain is basically making new "roadways"....with deep veins and many of them. That was very exciting!! They were amazed at her and said she was one of their top 10 patients.
During the studies Lola wanted to know everything they were doing and was interested in all of it. Even though they poked, prodded and sedated her, through it all, she did not complain but instead smiled as if she knew she was part of something really special. She is very brave and we are extremely proud of her.
It is our greatest desire to help Lola and other children like her. So again, I turn to you, my family and friends, for your help by making a donation to continue to support the necessary research to find a cure.
You have our heartfelt gratitude as we strive to make a difference in the lives of those affected by Sturge-Weber Syndrome.
Much Love,
Mitch and Jeanette Ribak
Please go to: www.lolasgift.com to make a donation online.
Tuesday, February 8, 2011
Thursday, February 3, 2011
see.snow.day




Wednesday, February 2, 2011
see.white.out






Tuesday, February 1, 2011
see.chicago.blizzard!
Sunday, January 30, 2011
see.study.buddy
Thursday, January 6, 2011
Friday, December 17, 2010
see.hungry. guests
This is Gilbert.
This is Rajah.
That isn't snow on his beard. It's old age and wisdom. He generally keeps all wisdom to himself and doesn't share with Gilbert.
I told Mike that we are going to have dreams of circling hungry sharks after Rajah leaves!
Oh, and he is camera shy.
Can you guess how I got him to sit still for a few seconds?
Good boy Miles.
Monday, December 13, 2010
see.turkey.day
Yea, we aren't either. And probably won't be for an entire year.
This was our first official Thanksgiving at our house hosting friends (the friends who did not travel to see family this year). Therefore our official Thanksgiving name this year was:
"Orphan Thanksgiving"
And what we lacked in family we made up in food, drinking, and dogs.
Our party included 6 people, 3 dogs and lots of merry cheer.
For the food here is what finally landed on the table:
appetizer
Amish Turkey (17.5 lbs) (post brine)
Mashed potatoes, southern cornbread casserole, skillet green bean casserole, carrot souffle, cranberry sauce, hand made dinner rolls, gravy, sweet potato casserole (Sarah), broccoli casserole (Sarah), macaroni and cheese (Kelly via Doug).
Dessert: pumpkin pie, apple pie, and pecan pie
Whew! Here are a few food pics from the day:
I asked Mike to carve the turkey. He looked a little nervous, watched a you-tube video on turkey carving, and came back confident and quite skilled!
What a great feast!
Until next year!!

