This weekend, Mike is flying to Florida to play in a very special golf tournament.
Flying to Florida to play golf for a weekend isn't something he does regularly!
He is playing in the:
Tropical Realty's 6th Annual Golf Tournament
And the cause?
Miss Lola!
Here she is when she was a sweet little baby!
She looks like Miss Muffet!
Lola and Miles playing, I think he just licked her!
Lola has the sweetest smile, an adorable laugh and a HUGE amount of character!
I don't think I have ever seen a picture where she wasn't smiling!
When she knows Uncle Mike is coming, she runs to the door and yells:
"UNCLE MIKE, UNCLE MIKE!!"
It is probably the cutest thing ever!!
So why is there an entire golf tournament for Lola?
Well, this is from Lola's Gigi (Mike's mom):
"Lola was born with a rare disease called Sturge-Weber Syndrome (SWS). SWS is a congenital neurological disorder of unknown etiology. It is an enigmatic syndrome, seldom hard to recognize but often difficult to predict or treat effectively. As a parent/grandparent you try to protect your child/grandchild from whatever comes their way and when you can’t it’s the most horrible thing in the world. We wish she wasn’t born with SWS and we wish we could go inside her brain and take it all away, but we can’t."
"Lola and Sturge-Weber Syndrome have taught us to cherish every single day and not take one moment for granted. We know that this syndrome is highly unpredictable and not well understood and that her future with SWS may be hard. So we view every day that is full of her laughter and song, as a true blessing to our family and anyone who knows her."
He is playing in the:
Tropical Realty's 6th Annual Golf Tournament
And the cause?
Miss Lola!Here she is when she was a sweet little baby!
She looks like Miss Muffet!
Lola and Miles playing, I think he just licked her!Lola has the sweetest smile, an adorable laugh and a HUGE amount of character!
I don't think I have ever seen a picture where she wasn't smiling!
When she knows Uncle Mike is coming, she runs to the door and yells:
"UNCLE MIKE, UNCLE MIKE!!"
It is probably the cutest thing ever!!
So why is there an entire golf tournament for Lola?
Well, this is from Lola's Gigi (Mike's mom):
"Lola was born with a rare disease called Sturge-Weber Syndrome (SWS). SWS is a congenital neurological disorder of unknown etiology. It is an enigmatic syndrome, seldom hard to recognize but often difficult to predict or treat effectively. As a parent/grandparent you try to protect your child/grandchild from whatever comes their way and when you can’t it’s the most horrible thing in the world. We wish she wasn’t born with SWS and we wish we could go inside her brain and take it all away, but we can’t."
"Lola and Sturge-Weber Syndrome have taught us to cherish every single day and not take one moment for granted. We know that this syndrome is highly unpredictable and not well understood and that her future with SWS may be hard. So we view every day that is full of her laughter and song, as a true blessing to our family and anyone who knows her."
The love and compassion of Lola's family, friends, doctors, nurses, and community is remarkable! And the money they have raised in this tournament has helped fund SWS research.
And that helps Lola and all the other people affected with SWS! What a beautiful thing!!
Check out www.lolasgift.com
Have fun at the tournament everyone!!!
Love, Aunt Mel
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That's amazing. I'm glad the tournament was a success!
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